Consumer participation – planning
This includes: how-to manuals, frameworks and models of consumer participation.
The Ageing and Aged Care in Australia booklet
The Ageing and Aged Care in Australia booklet provides a concise overview of the Australian Government's ageing and aged care policies and programs.
A Framework of Consumer Engagement in Australian Health Policy
This article describes a framework for thinking about consumer engagement in Australian health policy. It presents eight interacting issues that influence the practice of consumer engagement: purpose, type, initiator, who is engaged, timing, techniques, practical issues, and contextual issues. Evaluation is recognised as a separate but important factor. These issues can be used to review consumer engagement practice, plan consumer engagement programs, and identify the trade-offs that must be made when conducting consumer engagement.
A Person-centred Communication and Reflection Model: Sharing Decision Making in Chronic Care
A communication model was developed to help professionals working in the area of shared decision making in chronic care. The idea was to help doctors to gain an insight into patients’ decisions, rather than the opposite.
Aboriginal and Torres Strait Islander Health Workforce National Strategic Framework (2002)
The Workforce Strategic Framework presents a 5-10 year reform agenda to build a competent health workforce to address the health needs of Aboriginal and Torres Strait Islander peoples.
Accessible Events - A Guide for Organisers
This is a useful resource for anyone planning a consumer participation event. The guide was developed by Meeting Events Australia and the Human Rights and Equal Opportunity Commission. It discusses the legal responsibilities organisers have for making sure that their event is accessible for people with disabilities and gives practical suggestions on how to do this from start to finish.
Advocacy, Leadership, Community Participation: A Training Program for Health Consumers and Carers
This is a useful clear set of practical workshops designed and tested by a broad range of community members. Produced by North Central Metro Primary Care Partnership, it aims at producing more effective participation in the health system. The program outlines workshop topics such as advocating for change, working in groups and finding funds. It includes tips for facilitators and information sheets on issues such as confidentiality and what to consider when deciding whether to join a committee.
The report documents the development of a 'staff-consumer collaboration in treatment' workbook which is designed for collaborative use by case-managers and consumers within individual treatment settings, and aims to assist consumers to participate more fully within their own treatments.
Alfred Psychiatry Consumer Participation: Book of Procedure
This report summarises the achievemenets of the Consumer and Provider Partnerships Project (CAPPs) and has been a consumer initiative developed by consumers who are current members of the Alfred Psychiatry Consumer Participation Program and who are currently accessing Alfred Psychiatry for their hown health needs. Resources coming out of the project include an Audit Tool which could be used by services other than Alfred Psychiatry. The Book of Procedures and Staff-Consumer Collaboration in Treatment
Alice Springs Hospital: Consumer Feedback Questionnaire and Guide for Interviewers
Consists of a Consumer Feedback Questionnaire and Guide for Interviewers for the Alice Springs Hospital. This is a companion document to the report 'Alice Springs Hospital: Implementing consumer feedback into a continuous quality improvement framework', also available from the this website.
The evaluation reports significant impacts and achievements including that the strategy was consumer driven; represented a collaborative partnership between consumers and senior management and increased mutual respect; has been accepted as a component of staff selection; is a visible commitment to meaningful consumer participation and the evaluation has identified a range of learnings for consumers.
An evaluation of the National Resource Centre for Consumer Participation in Health
This report presents the findings and conclusions of the final impact evaluation of the National Resource Centre for Consumer Participation in Health (NRCCPH). It is the last stage of a three year evaluation by the Centre for Development and Innovation in Health (CDIH), La Trobe University. The primary purposes of this final impact evaluation were to assess the achievements of the Centre in terms of its goals and objectives; to evaluate the effectiveness and impact of the Centre in promoting awareness and utilisation of consumer participation strategies in health, and to make recommendations about the future development of the Centre.The evaluation methodology included document analysis of a range of reports, surveys of users and working group members of the Centre, key informant interviews and reflective discussions with staff.
This document has been prepared specially for those who have a governance
role within the health system. This includes roles with responsibility for setting strategic direction, and overseeing the delivery of health care by health services, hospitals or regional healthcare organisations.
This document has been prepared specially for people who directly provide
healthcare services to consumers, patients and client.
Best Practice in Person-centred Health Care for Older Victorians
This report presents a summary of Phase 1 of the Best Practice in Person-centred Health Care for Older Victorians project undertaken by the National Ageing Research Institute (NARI) on behalf of the Victorian Department of Human Services(DHS).
This checklist is a tool to assist health service boards of directors to review their safety and quality program against the elements of the policy. It may be used as a guide to the roles and responsibilities that boards and management have in facilitating effective implementation of the policy.
Building a culture of participation - Handbook
The handbook provide useful ideas about how to actively involve children and young people in services and policy making.
Building community partnerships
Half-day workshop for consumers, carers and community members, staff, managers and board members from primary care services in Victoria. Includes a workshop flier, workshop outline, tips for facilitation, equipment and handouts, workshop evaluation form for participants and a list of references.
Building consumers in: Project report
This report documents the goals, key lessons and anticipated outcomes of the Arthritis Victoria Consumer and Provider Partnerships Project. The Consumer Participation Project provided an opportunity for the organisation to re-identify and re-affirm the central role of consumers in the organisation. A key lesson of the project was that the various strategies for consumer engagement adopted by the organisation over its thirty year history have reflected the social, political and economic contexts of the time, and that consumer participation is a constantly evolving process
Building consumers in: a resource manual in consumer participation for the not-for-profit sector
This manual is designed to be a resource book to assist the not-for-profit sector to develop policies and practices that facilitate consumer participation in the organisation. It chronicles the development of Arthritis Victoria (AV) from a small self-help group to an organisation with more than 40 paid staff and 600 volunteer workers, most of whom have been consumers of AV services.
Bundoora Extended Care Centre's Progress Report and Matrix
Bundoora Extended Care Centre's progress report details how this organisation runs its consumer/community participation program. It gives examples of the types and range of activities that can be undertaken. The report is organised using a helpful matrix that divides participation into different kinds of strategies and links each strategy to a specific level in the organisation.
Cancer Australia - Cancer Support Groups
A guide to setting up peer-faciltated supports for peer facilitators.
Citizens Juries: A Model for Involving the Community in Health
Increasingly, consumer participation in treatment decisions has become a focus of health care management. Interest is now shifting to models of participation by consumers not just as patients but as citizens with a right to participate in resource allocation and other health policy concerns. This article examines a Western Australian attempt to adapt the concept of citizens’ juries as a model to broaden the range of consumers engaged in policy development in Australia.
Communication and consultation with demetia patients
Exploring ways for staff to involve people with dementia in developing services.
Community Advisory Committee Guidelines: Victoria public health services (2006)
The revised community advisory committee (CAC) guidelines for Victorian public health services are provided to assist public health services to develop effective CACs. CACs are expected to advise consumer participation at all levels of public health services. The 2000 guidelines were written to support the initial establishment of CACs. CAC were established as a response to the changes to the Health Services Act 1988.
Community Advisory Committees are a statutory requirement for all Metropolitan Health Services. It is expected that Community Advisory Committees will assist health services to ensure mechanisms are in place to facilitate appropriate community and consumer participation at all levels in the health service. These guidelines were developed to assist in the selection and appointment of members of community advisory committees and to provide guidance in relation to the role and conduct of such committees.
Community Participation Program
The Community Participation Program assists young people with a disability who require an alternative to paid employment or further education. The program provides funding for a series of activities including voluntary work, accessing friendships and support networks, work experience, mentoring; and personal care and behaviour support.
Community and consumer participation framework
This framework provides health service managers and service providers within Central Northern Adelaide Health Service with an overarching structure for the development of local strategies and action plans for community and consumer participation and describes the principles in which we will operate
A resource kit designed to assist Area Health Service Managers and project leaders in establishing and maintaining community and consumer input into planning, policy development and service monitoring.
The Victorian Clinical governance policy framework is the Department of Health’s policy on clinical governance. This checklist is a tool to assist consumers to understand how they can participate in safety and quality activities as outlined in the policy. It may be used as a guide to the roles and responsibilities that consumers have in facilitating effective implementation of the policy.
This document contains five fact sheets designed to help consumer representatives. They cover the topics of: consumer rights; before you start; resource checklist; common problems and solutions; and effective representation.
The aim of this guide is to support consumers and carers participating in national advisory and reference groups of Cancer Australia.
Consumer Participation in Health: Translating Policy into Practice
Many health services find themselves wishing or needing to develop consumer participation programs and integrate them into their organisation’s structure. This article contains two models, the first describes how any health service could begin to develop a consumer participation program that is driven by the consumers that access its service. The other example provides greater detail of the model used by Alfred Psychiatry and two of the projects that have developed from it.
Consumer Participation in Staff Selection Strategy
At the Northern Area Mental Health Services a Consumer Participation in Staff Selection Strategy was initiated by consumers and involved the recruitment, training and participation of consumers in staff selection processes. The evaluation two years later found that it had 'profoundly influenced the culture of the service' (p. 6), not just in employment processes, but in terms of relationships between staff and consumers.
Request recruitment of consumers for a committee, forum or focus group.
Consumer and Community Participation Self-Assessment Tool for Hospitals
This tool was produced in 2003 after an evaluation conducted with five metropolitan health services led to revision of the previous audit tool created by National Resource Centre for Consumer Participation in Health. The tool is designed to help hospitals and hospital units to assess how much scope their system allows for consumer (patient), carer and community participation. The tool helps to document policies, processes and activities; identify strengths and weaknesses; and determine the steps and resources needed for improvements. The tool can also be used by hospitals to rate current activities using the EQuIP scale.
Consumer participation in Australian Divisions of General Practice: a case study
A General Practice Division is a local network of General Practitioners. There are 123 of them across Australia. Many of these Divisions of General Practice have involved consumers and the community in the planning and implementation of their work. The case studies document the rationale for involving consumers; describe the desired outcomes of consumer involvement; the methods employed to involve consumers and the enablers and barriers to consumer participation efforts from both the Division and consumer's perspectives.
Consumer participation in Australian primary care: a literature review
This literature review identifies issues affecting consumer participation in primary care, examines how these differ from those relevant to other health care sectors, and outlines lessons learned to date.
Consumer participation in accreditation : resource guide
A guide to accreditation processes designed for workers in health services and accreditation agencies, and for consumers wishing to be involved in accreditation or quality improvement activities. Guidelines emphasise strategies for sustaining consumer involvement in accreditation and quality improvement.
Consumer participation in primary care. Guide to the Training Resource
This Training Resource is a set of materials to help health care and consumer organisations build their own workshops. The aim of the Training is to help organisations develop a service that is more responsive to consumers' needs, enhance service quality and improve consumers' health outcomes. This Training Resource has two sections: this guide and a set of four training modules.The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The four training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module A
This module is for staff and consumers and provides an overview of consumer participation in health, including the language we use, what different groups know, matching methods to purpose and implementing consumer participation. The module contains trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module B
This module is for staff and focuses on consumer participation as part of organisational change exploring current consumer participation efforts and defining your organisation's vision for consumer participation. It consists of trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module C
This module is for consumers and focuses on identifying and speaking from the consumer perspective, roles for consumers and networking. It includes trainer notes, running sheet, exercises and powerpoint slides.This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module D
This module is for consumers and staff and focuses on actively engaging together to achieve a culture shift towards greater consumer engagement. The module includes trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
The aim of this project was to investigate if and how consumers, representatives of consumer and community groups and members of the broader community would prefer to be involved in Flinders Medical Centre; to explore some of the issues for consumers and representatives of consumer and community groups which may inhibit or enhance their participation; and to develop a consumer participation model for Flinders Medical Centre that is based on the findings of the study.
Consumer self-rated outcome measures in mental health: A report to the Mental Health Branch
A comparative analysis of the consumer self-rating outcome measures now in use in mental health services throughout Australia, identifying international best practice, and making recommendations towards a uniform national approach.
Consumer, Carer and Community Participation Resource
This resource has been developed to assist primary health agencies increase the participation of consumers, carers and the community in their health service. It contains information and resources developed for four workshops that focused on three key themes: the connection between consumer participation, health promotion and community development; engaging newly arrived communities; and consumer participation and chronic disease management.
DHS Indicators project E Newsletter updates
DHS Indicators project E Newsletter updates, October 2008, January 2009, March 2009
The Victorian Clinical governance policy framework is the Department of Health’s policy on clinical governance. This checklist is a tool to assist the department to review its roles and responsibilities in facilitating effective implementation of the policy.
The Victorian Clinical governance policy framework is the Department of Health’s policy on clinical governance. This checklist is a tool to assist the department to review its roles and responsibilities in facilitating effective implementation of the policy.
A statewide workshop was convened in February 2001 which has fostered a greater level of communication between the Divisions and consumers across Western Australia. Consumers are indicating that they wish to move to a different participatory mechanism in order to enhance their relationship with the Division movement. A final version of the consumer action plan is being developed and will include a consumer consensus statement. Learning outcomes of the project are also discussed.
The Australian Council on Healthcare Standards: EQuIP5 Standards and Criteria
East Gippsland and Wellington Primary Care Partnerships: guide to consumer and carer participation
This guide was developed to assist primary health and community service agencies to enhance the quality and effectiveness of their engagement with consumers and carers. Begins by defining key terms, outlines principles and core values which underpin effective participation, and discusses various levels of participation. Includes audit tools for assessing organisational capacity for participation, policy guidelines, a matrix of strategies and a list of useful resources.
Education and training for consumer participation in health care: final report of project
The report looks at how training, education and learning for consumers, health professionals and administrators to enhance participation in health care policy, planning, service delivery and evaluation can be made more effective.
Education and training partnerships in mental health: learning together
Report of a project commissioned to advise on future directions for education and training. The method of the project was consultative, involving fifty or so people committed to improving mental health services through education and training. The central focus became the need for change within and between five major disciplines. The key driver was the needs and rights of consumers and carers, as they defined them around their 'lived experience'.
This project aimed to enhance consumer participation in the four metropolitan health authorities located in Perth. Specifically the project aimed to achieve a clearer direction for community advisory councils established by health services and hospitals. Activities of the project included interviews, focus groups and forums conducted with service providers, staff and represented and non represented consumers. The project highlighted a lack of commonality in approaches to consumer participation. Outcomes of the project included the development of a Community Advisory Council Participation Plan. The plan is included as an appendix to this report.
Establishing an implementation network: lessons learned from
This article describes a process to establish community-based participatory research between academics, researchers and mental health consumers in the USA. The article describes the lessons learned: changing attitudes; sharing staff; expecting obstacles and formalizing solutions;
monitoring and evaluating; adapting and adjusting; and taking advantage of emerging opportunities. Some of these lessons were previously known principles that were modified as the result of the CBPR process, while some lessons derived directly from the interactive process of forming the
Partnership.
Evaluation of the effectiveness of the CAC to boards fo Victorian Public Health Services
Evaluation of the community advisory committees in Victoria conducted by Health Outcomes Internation for the Department of Human Services
Evidence supporting consumer participation in health
The document provides compelling support for the value of consumer participation in individual care, health service development and policy development for the broader health system.
A question and answer approach is taken in presenting the information from the Illawarra Consumer and Provider Partnerships Project. Key to the Illawarra approach was the appointment of a Consumer Advocate whose role was to focus exclusively on the cultural change needed to develop effective working relationships between the service and the community. Relationship building occurred at many levels and the Illawarra Area Health Service now supports a number of consumer participation mechanisms, and consumers are represented on a number of consumer support groups. The model is not a static one but is continually developing.
Feedback, participation and consumer diversity: an annotated bibliography
Concerned about consumer groups being excluded from participation in mainstream processes, this project was undertaken to draw together existing information about participation of consumers previously marginalised from participating in health services planning.
This document sets an agenda for collaborative government action in mental health for five years from 2009, offers a framework to develop a system of care that is able to intervene early and provide integrated services across health and social domains, and provides guidance to governments in considering future funding priorities for mental health.
Health Advocacy Framework Queensland Health 2011
The Health Advocacy Framework: Strengthening health advocacy in Queensland aims to inform stakeholders about health advocacy and provide a framework to assess and strengthen health advocacy.
Health Canada policy toolkit for public involvement in decision making
The purpose of the toolkit is to support Health Canada's mission to maintain and improve the health of Canadians by providing direction for Health Canada employees on public involvement.
The Victorian Clinical governance policy framework is the Department of Health’s policy on clinical governance. This checklist is a tool to assist health care teams to review their safety and quality program against the elements of the policy. It may be used as a guide to the roles and responsibilities that health care teams have in facilitating effective implementation of the policy.
How are Community Advisory Committees meeting the ‘Doing it with us not for us’ Policy
19 Community Advisory Committees (CACs) across Victoria are asked to identify one objective/action in Community Participation Plans (CPP) and discuss how it relates to the priority actions and standards in ‘Doing it with us not for us’Policy.
Implementation guidelines for public mental health services and private hospitals
Information to guide implementation of the national standards for mental health services by public mental health services and private hospitals.
Improving consumer participation in the health system in Central Australia
This report outlines the process of the establishment of a Consumer Reference Group within the Central Australian Division of General Practice and how it was established.
Improving health services through consumer participation: a resource guide
The guide is for people working in health care organisations who want to increase consumer participation in the planning, management and evaluation of those organisations. This is in a zip file and includes Sections 1 to 7 plus Appendices. To open a zip file you need to save the zip in your desktop and then right click to open. Each of the sections are also available separately in pdf format (see separate entries in this website).
Section 1 of a guide for health organisations wanting to increase consumer participation in the planning, management and evaluation of their organisations. This section includes information on the principles, benefits and levels of consumer participation, assessing organisational capacity for change, and methods and models for implementing and evaluating consumer participation. This file contains Section 1 only of the resource. Sections 2 - 7 plus appendices are also available from this website.
Section 2 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 2 has a focus on assessment and planning for consumer participation. Other sections of this resource are also available from this website.
Section 3 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 3 has a focus on practical tools such as the strategy selector table. Other sections of this resource are available from this website.
Section 4 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 4 has a focus on managing the challenges including ways to maximise the ability of consumers to participate. Other sections of this resource are also available from this website.
Section 5 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 5 has a focus on evaluation and includes an evaluation checklist and data collection tools. Other sections of this resource are also available from this website.
Section 6 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 6 has a focus on frequently asked questions and contains an alphabetical listing of questions that arise from those interested in consumer participation, with brief answers. Other sections of this resource are also available from this website.
Section 7 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations. Section 7 has a focus on resources,links, practical kits and 'how-to-guides', readings and websites. Other sections of this resource are also available from this website.
Information series. An introduction to participation in health
Consumer participation is increasingly being linked with improvements in the quality of health care and improved health outcomes, and as a result is being encouraged by Commonwealth, State and Territory governments. This information sheet provides a brief overview including definitions, examples of consumer participation in action; benefits of consumer participation in health and what's on the horizon for consumer participation.
Information series. Consumer participation on committees
Consumers and carers of health services and representatives from consumer organisations are often asked by service providers to join committees and groups to provide information, advice, feedback and direction. The types of committees and groups that consuimers join vary and depend on the nature of the service, the type of information required and the level of consumer input sought.
Information series. Consumer participation: Questions for health organisations
Questions most commonly asked by service providers include: how do we find consumers? How do we get consumers involved? Who is a real consumer and how do we know when we have a real consumer voice? These questions can be roughly broken into three groups - (1) Questions to ask before you start trying to identify consumers (2) Questions to ask when you are ready to begin involving consumers and (3) Evaluation questions.
Information series. Key resources and tools for participation in health
Resources are listed in this information sheet according to themes including: introductory resources; resources that support consumers; resources that support health service providers; resources for self-assessment; resources in education and training; resources with a focus on hospitals and resources that help identify nmethods and models of participation; accreditation; consultation; resources focusing on specific groups of consumers; policy examples; practice examples and participation in research.
Information series. Methods and models of consumer participation
This information sheet provides a brief introduction to the various methods of consumer participation. This information sheet provides an overview of the various degrees of participation from participation at the level of individual health care through to participation at an organisational level.
Involving consumers in improving hospital care: lessons from Australian hospitals
The aim of this project was to write a report directed at hospitals which provides examples from Australian hospitals of how consumer partnership can be used to improve quality of care. This report provides the first analytical account of what might make consumer partnership work in hospitals. It contains a range of case studies and a few good examples of consumer participation.
Learning and Development Events
2009 WORKSHOPS FOR HEALTH PROFESSIONALS
Manuals for Community Organisations
As part of the Victorian Council of Social Service (VCOSS) work to support and resource organisations in the community sector VCOSS is updating and publishing new editions of its popular manuals for community organisations. The manuals are designed for small, not-for-profit organisations in particular, providing information that is useful and easy to understand.
Massachusetts Engaging Consumers as Partners in Care
Institute for Health Improvement Senior Vice President, Jim Conway, has long been an advocate for patients and their families, calling on providers, administrators, and health systems to include patients as vital partners in health care delivery. Recently, Conway was named chair of a new state-wide campaign in Massachusetts, the Partnership for Healthcare Excellence, whose core goal is partnering with patients. In this interview, Conway discusses how and why the group was formed, the goals of the new initiative, and how they align with the state’s health care reform effort.
Mental Health Discrimination and Insurance. A Survey of Consumer Experiences 2011
This report details the results of a national survey undertaken by the MHCA and beyondblue: the national depression initiative in 2011, which captures the experiences of Australians with lived experience of mental illness in applying for, or making claims against insurance products.
NEMICS/HIC project information 2008
Health Issues Centre recently undertook a study examining consumers’ experiences of the consumers receiving cancer care, and in particular those who received both public and private care during their journey. This project was commissioned by North Eastern Metropolitan Integrated Cancer Services (NEMICS), which saw this as an important issue but where little information existed.
National Mental Health Commission Workshop 2011: Report of key issues and themes
The National Mental Health Commission Workshop brought together Government, service providers, consumers and carers from around Australia, to discuss the establishment and priority focus for the new National Mental Health Commission, due to commence in January 2012. This report summarises what was discussed at the workshop.
National Safety and Quality Health Service Standards 2011
The Commission developed the National Safety and Quality Health Service (NSQHS) Standards to drive the implementation and use of safety and quality systems and improve the quality of health service provision in Australia.
National Standards for Mental Health Services 2010
This document outlines a revised set of mental health service standards which can be applied to all mental health services, including government, non-government and private sectors across Australia.
New Resources added for July 2009- Public Engagement
A collection of resources focusing on public engagement in health policy
Online discussion forum on Patient and Public Involvement in Health
Online discussion forum on Patient and Public Involvement in Health hosted by the WHOLE (Web-based Health Organisations Learning Environment) project.
Organisational readiness checklist
The Victorian Clinical governance policy framework is the Department of Health’s policy on clinical governance. This checklist is a tool to assist organisations to review their operational capacity against the generic structural and process elements essential to achieving effective clinical governance.
Organisational self-assessment and planning tool for consumer and community participation
This self-assessment tool is designed to assist organisations to determine their commitment and capacity regarding consumer and community participation, and to identify areas of practice that could benefit from consumer participation.
Patient and Public Involvement Homepage. (UK)
This specialist collection aims to support the implementation of patient, user, carer and public involvement in health care by providing access, in one location, to the best information which is freely available on the Web.
Patient-centred care: Improving quality and safety through partnerships with patients and consumers
This paper includes information on the background, context, evidence and impetus for improving quality and safety by giving health care a more patient centred focus. The paper also provides practical examples, tools, tips and resources that can be used by Australian healthcare organisations to re-orient their systems to a more patient centred approach.
People-Centred Health Care: A Policy Framework (WHO)
This policy framework for people-centred health care has been prepared by the World Health Organization to help governments and other health partners in encouraging dialogue and initiating action.
Person Centred Practice: Guide to implementing person-centred practice in your health service
The toolkit for health service provider.
Primary care self assessment tool for community and consumer participation, V1.0
A tool to assist organisations to assess their community and consumer participation activities.
Project to support nurses to involve consumers in their health care.
An eight month project which sought to examine issues (barriers) which impact upon the development of nurse-consumer partnerships in acute health care. Results from pre and post-workshop surveys of nurses' attitudes to nurse-consumer partnerships demonstrate a strong belief in and commitment to the notion of partnership.
The workshop were designed to provide policy perspectives on consumer participation in mental health research, background information about stakeholder views about benefits, barriers and priorities for action to promote consumer participation in research and models for active consumer involvement in research.
Queensland Health: community engagement handbook
A handbook developed by the Consumer and Community Participation Program Area of the Quality Improvement and Enhancement Program for use by District Health Councils. The handbook is a companion document to the Consumer and community participation toolkit developed for Queensland Health Staff. The toolkit is also available from this website.
Queensland Health: consumer and community participation toolkit
This kit is intended for use by staff who want to increase consumer and community participation in their area of Queensland Health. This is an user-friendly, easily accessible resource which contains information, case examples, methods, tools and resources which are relevant and meaningful to their organisational context.
Queensland Health: position statement: consumer and community participation
Consumer and community participation in health service planning and delivery is part of the way in which Queensland Health engages with Queenslanders. The intention of this document is to provide a clear guide to consumer and community participation at district and local service delivery level.
Recognising and supporting care relationships for older Victorians Action Plan 2006-2009
The purpose of Recognising and supporting care relationships for older Victorians Action Plan 2006–2009 is to improve recognition of, and support for, care relationships for older Victorians through policy and service development and delivery.
Refugee consumer voice : how to ensure it makes a difference
The refugee health project was a consumer participation project which aimed to ensure that health services meet the needs of newly arrived refugees in Brisbane inner south suburbs. Partners in the project were the Brisbane Inner South Division of General Practice and the Queensland Program of Assistance to Survivors of Torture and Trauma. The objectives of the project were to obtain refugee feedback about services, and to ensure ongoing consumer involvement in the planning and development about services. The project focused on training, resourcing and supporting consumer consultants.
Response to the scoping study for a new peak national mental health consumer organisation (2011)
Australian Government response to the scoping study to inform the establishment of a new peak national mental health consumer organisation.
Scoping study to inform the establishment of a new peak national mental health consumer organisation
This report presents the ideas, preferences and areas of consensus which emerged throughout the national scoping project for a new peak national mental health consumer organisation. It outlines an approach to organisational development which foreshadows a strong, viable and accountable organisation based on good governance principles and reflecting the need for an organisation which can deliver for and with mental health consumers nationwide.
Statement on consumer and community participation in health and medical research
The Consumer's Health Forum of Australia Inc and the National Health and Medical Research Council worked with consumers and researchers to develop the Statement. Consumers and researchers responded to a consultation paper and participated in roundtable discussions during its development.The Statement on Participation is intended as a guide to consumers and community participation at all levels and across all types of health and medical research. It includes a checklist as a starting point to facilitating involvement. The summary statement (with the same title) is also available from this website
Ten year roadmap for national mental health reform: draft
The draft roadmap details a commitment by governments to a long-term national reform plan for mental health to guide future action and investment across Australia over the next ten years.
The roadmap is a key component of the Australian Government's Delivering national mental health reform package of the 2011-12 budget. The draft has been developed with states and territories, informed by input from mental health experts, including mental health consumers and carers.
The Advocacy Toolkit for Consumers Queensland Health 2011
The Advocacy Toolkit gives consumers an easy to use resource that supports better discussions with their healthcare professionals and help them to take an active role in decision-making about their own health care.
The Australian Safety and Quality Framework for Health Care
The Framework specifies three core principles for safe and high quality care. These are that care is consumer centred, driven by information, and organised for safety.
This is the second Australian Government Implementation Plan against the National Strategic Framework for Aboriginal and Torres Strait Islander Health (NSFATSIH) 2003-2013.
The little purple book of community rep-ing
A humourous and accessible guide for people wanting to be community or consumer representatives. The guide was based on the experiences of people who had actually been community or consumer representatives.
NOTE. The cover page for the book is also in this website.
The little purple book of community rep-ing. Book cover
A humourous and accessible guide for people wanting to be community or consumer representatives. The guide was based on the experiences of people who had actually been community or consumer representatives.
NOTE: The full book is also available in this website.
The needs of Victorian rural consumers who travel to Melbourne hospitals
This discussion paper was developed following concerns expressed by several metropolitan hospitals’ Community Advisory Committees (CAC) about the range of issues faced by rural consumers when using city hospitals. Health Issues Centre (HIC) proposed developing a discussion paper and the work was funded by the Statewide Quality Branch of the Victorian Department of Human Services (DHS).
To pay or not to pay that is the question
This article presents the arguments for and against payment to consumer representatives and explores the assumptions behind these arguments.
This document has two main purposes. It is a tool for the Board and staff of UMH&CS and WBNH and the people of the Upper Murray and it is also an information resource to assist those wishing to undertake a comprehensive, population-based, health and community service
needs assessment. The process to develop this resource was unusual in that it combined an epidemiological and evidence-based approach, with a high level of community participation.
Victorian clinical governance policy framework: Enhancing clinical care
This framework is the Department of Health’s policy on clinical governance.
What Consumer say about consultation.
Health Issues Centre recently asked consumers on our HIC Consumer Register to reflect on their experience of being consulted. Here are some of their comments.
What Mental Health Consumers and Carers Want Brochure
The National Mental Health Consumer & Carer Forum (NMHCCF) is the combined national voice for consumers and carers participating in the development of mental health policy and sector development in Australia
What is person-centred health care? A literature review
Barriers and enablers to person centred practice in this literature review. This literature review also discusses barriers specific to caring people with chronic disease, mental health, dementia, palliative care and neurological disorders.
These are important to know about so that you can consider them when you are action planning.
Working with consumers in NSW Health. Guidelines for Secretariat
This circular is designed to provide guidelines for the secretariat of departmental committees to support consumer representatives appointed to their committee. Could be adapted for use in other health services.
