Consumer participation – theory
This includes major policy documents and history of consumer participation
Building a culture of participation - Handbook
The handbook provide useful ideas about how to actively involve children and young people in services and policy making.
Building an Effective Voice for Health Consumers in South Australia
The formation of the Health Consumers Alliance of South Australia Inc. (HCA) is an important milestone in the evolution of creating a strong and independent voice for health consumers in the South Australian health system. Health Consumers Alliance of South Australia’s first year of operation was evaluated and this article summarises the findings, with a focus on the benefits and achievements of HCA and areas that require additional attention.
Although developed for Queensland health services, this handbook contains guidelines and practical tools that can be adapted for the Victorian community engagement.
Community Advisory Committee Guidelines: Victoria public health services (2006)
The revised community advisory committee (CAC) guidelines for Victorian public health services are provided to assist public health services to develop effective CACs. CACs are expected to advise consumer participation at all levels of public health services. The 2000 guidelines were written to support the initial establishment of CACs. CAC were established as a response to the changes to the Health Services Act 1988.
Community Advisory Committees are a statutory requirement for all Metropolitan Health Services. It is expected that Community Advisory Committees will assist health services to ensure mechanisms are in place to facilitate appropriate community and consumer participation at all levels in the health service. These guidelines were developed to assist in the selection and appointment of members of community advisory committees and to provide guidance in relation to the role and conduct of such committees.
Community Advisory Committee Resource Kit- Folder 12-Updates December 2009
This folder contains new documents added in December 2009 to the CAC resource Kit.
Documents include
A new health service for Liverpool
Benchmarking with CAC's
BNPCA consumer participation kit
CAC application form- template
CAC communication with boards- template
Developing a community participation plan PowerPoint
Getting involved in your health service PowerPoint
Information kit for Consumers on Community Advisory Committees- template
Measuring consumer feedback
Orientation checklist for new Community Advisory Committee members
Policy and funding details- Statewide Quality Branch
Position Description for CAC members- template
About the Community Advisory Committee- template
Primary care self assessment tool
QLD health community engagement hand book
Quality of Care report guidelines 2009
Whittlesea community engagement framework final report
Community Advisory Committees in Victoria’s Metropolitan Health Services
Increasingly, governments at both the state and federal level are encouraging health services to incorporate consumer participation into their structure for planning, decision-making and evaluation. This article describes how in Victoria, Consumer Advisory Committees have been used to bring a consumer voice into the Metropolitan Health Services.
Community Engagement to Improve Health
The NICE guidance includes all the recommendations, details of how they were developed and evidence statements, a quick reference guide for professionals and the public and supporting documents, including an evidence review and an economic analysis.
A resource kit designed to assist Area Health Service Managers and project leaders in establishing and maintaining community and consumer input into planning, policy development and service monitoring.
Consumer Engagement in Australian Health Policy
The Australian Institute of Health Policy Studies is undertaking this project with the aim of developing more effective models in the future. The first stage of the project is a literature review which explores current approaches and compares them to the methods used in other sectors and overseas. It includes examples of consumer involvement in the policy-making process
This report was developed by the Victorian Quality Council through a literature review and consultation with individual, consumer organisation, government departments, academic institutions and health services. The research aimed to identify research, evidence and opinion on consumer leadership and consumer participation in the heath system and hence provide advice on developing consumer leadership and capacity building in health care quality and safety improvement.
The aim of this guide is to support consumers and carers participating in national advisory and reference groups of Cancer Australia.
Consumer Participation in Australia
The National Resource Centre for Consumer Participation in Health (NRCCPH) has been established to promote and support consumer participation in the health system. The NRCCPH conducted a national needs assessment to identify current consumer participation initiatives at different levels in the health system, the barriers and issues for consumer participation and an appropriate role for the NRCCPH. This article draws on the findings from this needs assessment.
Consumer Participation: A Personal Reflection
Twenty-one years ago I had never heard of, or thought about, consumer participation in health. Indeed, being relatively young and healthy, I had little contact with the health care system. I was involved in politics and my attention was focused on improving the lot of women. My interest in health was focused on entrenching Medicare as a universal health insurance system. This article contains my personal reflection on the development of consumer participation over the last 20 years and some of its achievements.
Consumer and Community Participation Toolkit
This kit contains checklists, planning tools, resources, templates and case examples to assist health services plan and implement community participation activities.
Consumer participation in primary care. Guide to the Training Resource
This Training Resource is a set of materials to help health care and consumer organisations build their own workshops. The aim of the Training is to help organisations develop a service that is more responsive to consumers' needs, enhance service quality and improve consumers' health outcomes. This Training Resource has two sections: this guide and a set of four training modules.The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The four training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module A
This module is for staff and consumers and provides an overview of consumer participation in health, including the language we use, what different groups know, matching methods to purpose and implementing consumer participation. The module contains trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module B
This module is for staff and focuses on consumer participation as part of organisational change exploring current consumer participation efforts and defining your organisation's vision for consumer participation. It consists of trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module C
This module is for consumers and focuses on identifying and speaking from the consumer perspective, roles for consumers and networking. It includes trainer notes, running sheet, exercises and powerpoint slides.This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
Consumer participation in primary care. Training resource. Module D
This module is for consumers and staff and focuses on actively engaging together to achieve a culture shift towards greater consumer engagement. The module includes trainer notes, running sheet, exercises, powerpoint slides and participant handouts. This Training Resource has two sections: The Guide and a set of four training modules. The Guide gives an overview of the Resource, including information for organisations/services and information for trainers. The other three training modules are also available in this web site and include materials for trainers and handouts for participants.
The forum consisted of workshops on a range of topics including consumer participation as activism, consumer participation indicators, and guidelines, protocols and networks needed to support consumer participation. The forum explored the meaning of consumer participation and why it is important. Key themes emerging from the forum are also summarised.
Criteria for judging the quality of patient decision aids
This resource looks the standards, content and process of developing a patient decision aid
DHS Indicators project E Newsletter updates
DHS Indicators project E Newsletter updates, October 2008, January 2009, March 2009
A statewide workshop was convened in February 2001 which has fostered a greater level of communication between the Divisions and consumers across Western Australia. Consumers are indicating that they wish to move to a different participatory mechanism in order to enhance their relationship with the Division movement. A final version of the consumer action plan is being developed and will include a consumer consensus statement. Learning outcomes of the project are also discussed.
East Gippsland and Wellington Primary Care Partnerships: guide to consumer and carer participation
This guide was developed to assist primary health and community service agencies to enhance the quality and effectiveness of their engagement with consumers and carers. Begins by defining key terms, outlines principles and core values which underpin effective participation, and discusses various levels of participation. Includes audit tools for assessing organisational capacity for participation, policy guidelines, a matrix of strategies and a list of useful resources.
Education and training for consumer participation in health care: final report of project
The report looks at how training, education and learning for consumers, health professionals and administrators to enhance participation in health care policy, planning, service delivery and evaluation can be made more effective.
Establishing an implementation network: lessons learned from
This article describes a process to establish community-based participatory research between academics, researchers and mental health consumers in the USA. The article describes the lessons learned: changing attitudes; sharing staff; expecting obstacles and formalizing solutions;
monitoring and evaluating; adapting and adjusting; and taking advantage of emerging opportunities. Some of these lessons were previously known principles that were modified as the result of the CBPR process, while some lessons derived directly from the interactive process of forming the
Partnership.
Evidence supporting consumer participation in health
The document provides compelling support for the value of consumer participation in individual care, health service development and policy development for the broader health system.
Feedback, participation and consumer diversity: a literature review
Concerned about consumer groups being excluded from participation in mainstream processes, this project was undertaken to draw together existing information about participation of consumers previously marginalised from participating in health services planning.
Feedback, participation and consumer diversity: an annotated bibliography
Concerned about consumer groups being excluded from participation in mainstream processes, this project was undertaken to draw together existing information about participation of consumers previously marginalised from participating in health services planning.
Health Canada policy toolkit for public involvement in decision making
The purpose of the toolkit is to support Health Canada's mission to maintain and improve the health of Canadians by providing direction for Health Canada employees on public involvement.
Improving health services through consumer participation: a resource guide
The guide is for people working in health care organisations who want to increase consumer participation in the planning, management and evaluation of those organisations. This is in a zip file and includes Sections 1 to 7 plus Appendices. To open a zip file you need to save the zip in your desktop and then right click to open. Each of the sections are also available separately in pdf format (see separate entries in this website).
Section 1 of a guide for health organisations wanting to increase consumer participation in the planning, management and evaluation of their organisations. This section includes information on the principles, benefits and levels of consumer participation, assessing organisational capacity for change, and methods and models for implementing and evaluating consumer participation. This file contains Section 1 only of the resource. Sections 2 - 7 plus appendices are also available from this website.
Information series. An introduction to participation in health
Consumer participation is increasingly being linked with improvements in the quality of health care and improved health outcomes, and as a result is being encouraged by Commonwealth, State and Territory governments. This information sheet provides a brief overview including definitions, examples of consumer participation in action; benefits of consumer participation in health and what's on the horizon for consumer participation.
Information series. Consumer participation on committees
Consumers and carers of health services and representatives from consumer organisations are often asked by service providers to join committees and groups to provide information, advice, feedback and direction. The types of committees and groups that consuimers join vary and depend on the nature of the service, the type of information required and the level of consumer input sought.
Information series. Consumer participation: Questions for health organisations
Questions most commonly asked by service providers include: how do we find consumers? How do we get consumers involved? Who is a real consumer and how do we know when we have a real consumer voice? These questions can be roughly broken into three groups - (1) Questions to ask before you start trying to identify consumers (2) Questions to ask when you are ready to begin involving consumers and (3) Evaluation questions.
Information series. Key resources and tools for participation in health
Resources are listed in this information sheet according to themes including: introductory resources; resources that support consumers; resources that support health service providers; resources for self-assessment; resources in education and training; resources with a focus on hospitals and resources that help identify nmethods and models of participation; accreditation; consultation; resources focusing on specific groups of consumers; policy examples; practice examples and participation in research.
Information series. Methods and models of consumer participation
This information sheet provides a brief introduction to the various methods of consumer participation. This information sheet provides an overview of the various degrees of participation from participation at the level of individual health care through to participation at an organisational level.
A non-profit organization advancing research, policy, and clinical models that assure patients are fully informed and involved in decisions that affect their health and well-being.
Through the Quality Use of Diagnostic Imaging project work, the Royal Australian and New Zealand College of Radiologists has prepared a consumer information website on radiology procedures.
http://www.insideradiology.com.au
Involving consumers in improving hospital care: lessons from Australian hospitals
The aim of this project was to write a report directed at hospitals which provides examples from Australian hospitals of how consumer partnership can be used to improve quality of care. This report provides the first analytical account of what might make consumer partnership work in hospitals. It contains a range of case studies and a few good examples of consumer participation.
Learning and Development Events
2009 WORKSHOPS FOR HEALTH PROFESSIONALS
Manuals for Community Organisations
As part of the Victorian Council of Social Service (VCOSS) work to support and resource organisations in the community sector VCOSS is updating and publishing new editions of its popular manuals for community organisations. The manuals are designed for small, not-for-profit organisations in particular, providing information that is useful and easy to understand.
New Resources added for July 2009- Public Engagement
A collection of resources focusing on public engagement in health policy
New Resources added for March 2010- Patients as partners in care
New resources added to our website for March 2010
Online discussion forum on Patient and Public Involvement in Health
Online discussion forum on Patient and Public Involvement in Health hosted by the WHOLE (Web-based Health Organisations Learning Environment) project.
Ottawa Personal Decision Guide
A general decision guide that can be used for any health or social decision developed by the Ottawa Hospital Research Institute
Participation with culturally and linguistically diverse comunities
In early 2007, Health Issues Centre prepared a discussion paper for acute and primary health services and the Victorian Department of Human Services. The discussion paper sought to identify generalised barriers and enablers for Culturally And Linguistically Diverse (CALD) consumer and community participation in health services and proposed a framework including clear and additional strategies and resources for meaningful CALD consumer participation. This excerpt identifies the key factors that help and hinder CALD consumer participation.
Patient and Public Involvement Homepage. (UK)
This specialist collection aims to support the implementation of patient, user, carer and public involvement in health care by providing access, in one location, to the best information which is freely available on the Web.
Public engagement (Part I and II)
Public engagement (Part I and II):– engaging the public in healthcare policy: why do it? And what are the challenges?
This article explains briefly the rationale for engaging the public in decision making process and the development of health care policy. Part II of this series discusses how engage the public in decision-making processes and describes ‘deliberative processes’
Public engagement (Part III): how is it done? How can we tell if it’s effective?
This article analyses how public engagement is done and how can it be evaluated.
Queensland Health: position statement: consumer and community participation
Consumer and community participation in health service planning and delivery is part of the way in which Queensland Health engages with Queenslanders. The intention of this document is to provide a clear guide to consumer and community participation at district and local service delivery level.
Statement on consumer and community participation in health and medical research
The Consumer's Health Forum of Australia Inc and the National Health and Medical Research Council worked with consumers and researchers to develop the Statement. Consumers and researchers responded to a consultation paper and participated in roundtable discussions during its development.The Statement on Participation is intended as a guide to consumers and community participation at all levels and across all types of health and medical research. It includes a checklist as a starting point to facilitating involvement. The summary statement (with the same title) is also available from this website
The priorities of Victorian rural consumers who travel for healthcare- Loddon Mallee Roundtable Summary 24 April 2009.
This report brings together the reflections and ideas generated by consumers and health care workers from the Loddon Mallee region in Victoria and Melbourne who discussed ‘The needs of Victorian consumers who travel for healthcare’ and worked together to consider and define solutions and strategies to the key issues.
The role of patient satisfaction surveys in a national approach to hospital quality management
This report is very critical of much of the activity undertaken under the rubic of patient satisfaction and subjects the concept itself, as well as its operation, to critical analysis. Consists of 13 chapters with Chapter 9 covering a review of the issues in surveying patient satisfaction; the history and context of measuring satisfaction; how patient satisfaction is defined and and how data is used.
Theories of Medical Decision Making and Health: An Evidence-Based Approach
This article argues that as populations’ age and research that can reduce human suffering and death advances, it is essential to make research available to people in ways that they can use. Theories that illuminate underlying decision processes provide the essential bridge between research advances and health outcomes.
To pay or not to pay that is the question
This article presents the arguments for and against payment to consumer representatives and explores the assumptions behind these arguments.
Understanding Participation: A literature review
Ellie Brodie, Eddie Cowling, Nina Nissen, Angela Ellis Paine, Véronique Jochum and Diane Warburton
The overall aim of this literature review was to seek literature around the doing of ‘participation’ to clarify the broad understanding of participation; and to support the development of a ‘framework of participation’ that can help to inform and shape (and be shaped by fieldwork undertaken by The Pathways through Participation project in the UK.
This document has two main purposes. It is a tool for the Board and staff of UMH&CS and WBNH and the people of the Upper Murray and it is also an information resource to assist those wishing to undertake a comprehensive, population-based, health and community service
needs assessment. The process to develop this resource was unusual in that it combined an epidemiological and evidence-based approach, with a high level of community participation.
Variations in Lay Health Theories: Implications for Consumer Health Care Decision Making
The article provides empirical evidence that the ways American consumers once thought about health have changed and multiplied in this new era of competing health paradigms. The study demonstrates that in the current environment consumers think about health and health care in a multiplicity of very different ways, leading to the conclusion that we should not classify health care consumers as either conventional or alternative.
