Listing all library documents by title
"Consumer Involvement in health research: epistemological dissonance and the know-do gap.
Presented by Prof Paul Ward at the Consumers Reforming Health Conference, July 2011.
11th National Rural Health Conference - Keynote Presentations
Video of keynote speakers from the 2011 National Rural Health Conference
On the 20th of May 2008 Health Issues Centre held a one day forum for health consumers who participate on committees to share their experiences. The conference was held at Victoria University, 300 Flinders Street Melbourne and was attended by 105 Participants.
Conference presentations, program and report can be viewed by clicking the link below. This file is in zip format
25% DISCOUNT OFFER FOR GROUP TRAINING AND COURSE CONTENT INFORMATION
HIC accredited training in health consumer leadership and engagement.
A "healthy" consumer/community partnership - key success factors.
Presented by Elaine Hillis at the Consumers Reforming Health Conference 2011.
A Framework of Consumer Engagement in Australian Health Policy
This article describes a framework for thinking about consumer engagement in Australian health policy. It presents eight interacting issues that influence the practice of consumer engagement: purpose, type, initiator, who is engaged, timing, techniques, practical issues, and contextual issues. Evaluation is recognised as a separate but important factor. These issues can be used to review consumer engagement practice, plan consumer engagement programs, and identify the trade-offs that must be made when conducting consumer engagement.
Over the last 30 years or so, changes in the application of consumer law and health promotion have led to a more inclusive and better informed society. Though for roughly 20% of the population – those Australians with disabilities – the question is: has this social change really been effective? This article looks at the work of the Disability Advocacy and Information Service, and the regional groups its supports, in bring change to local communities.
A Model of Payment to Consumers, Carers and Community Representatives
This article presents information about the type and amount of payment made to consumer, carers and community representatives gathered by the National Resource Centre for Consumer Participation in Health. This information was then synthesised and used to establish Inner South Eastern Partnership In Community and Health's policy on payments to consumer representatives.
A National Health and Hospitals Network for Australia's Future - Delivering the Reforms
The Department of Health and Ageing has just published a document that outlines Government activities over coming months and years, including timelines and major milestones to implement the major health reform agreed by COAG in April 2010.
A Person-centred Communication and Reflection Model: Sharing Decision Making in Chronic Care
A communication model was developed to help professionals working in the area of shared decision making in chronic care. The idea was to help doctors to gain an insight into patients’ decisions, rather than the opposite.
A Tale of Two Health Literacies: Public Health and Clinical Approaches to Health Literacy
Interesting study measuring health literacy amongst the public and clinicians in Mexico, China, Ghana and India. The study used thirteen ‘essential Facts for Life messages’ to measure health literacy including: child development and early learning; nutrition and growth; immunisation; serious illnesses; and injury prevention.
A case study of policy change in ATSI health research
Health research policy: a case study of policy change in Aboriginal and Torres Strait Islander health research
There is considerate potential for health research to contribute to better health services and programs and improved health outcomes; the policies of health research funding agencies are critical to achieving health gains from research. The need for research to better address health disparities in Indigenous people has been widely recognised. This paper (i) describes the policy changes by NHMRC from 1997 to 2002 to improve funding of Aboriginal health research (ii) examines the catalysts for the policy changes (iii) describes the extent to which this has resulted in new models of research and (iv) outlines issues for Indigenous health policy in the future.
A guide for consumers doing health research
Consumers’ research is research undertaken from a consumer perspective, by or with consumers. It is research that arises out of consumers’ needs.
This Manual has been developed with the aim of assisting consumers in carrying out research into health issues. The Manual addresses the key issues to be considered in undertaking any research project and offers advice about how consumers can overcome some of the difficulties they are likely to face during their research.
A ladder of citizen participation
Author Sherry R Arnstein
A model framework for consumer & community participation in health and medical research
Produced by the Australian government's National Health and Medical Research Unit. The model framework is intended for use by research funding bodies, organisations or teams who wish to develop consumer and community participation in their work.
A person-centred care mental health workshop
Presented by Kylie Hinton at the Consumers Reforming Health Conference 2011.
A perspective on the patient's role in treatment decisions
Medical Care and Research Review.This article describes some of the tools currently available to help support better decisions and looks at some of the challenges to the implementation and dissemination of these efforts.
A proposal for the Federal Election from the National Oral Health Alliance
Statement from the National Oral Health Alliance
A snapshot of men's health in regional and remote Australia.
Produced by the Australian Institute of Health and Welfare. In late 2008 the Australian government announced its intention to develop the first National Men's Health Policy, which will have focus on a number of small groups including men in rural areas. Drawing on several data sources, this report provides a snapshot of the health of men in rural Australia.
Invitation for consumers to particippate in a consultation with the Australian Research Council.
ACE Prevention - research report
The Assessing Cost Effectiveness of Prevention (ACE-Prevention) project is the result of five years of research, funded by the National Health and Medical Research Council. It is the most comprehensive evaluation of health prevention measures ever conducted world-wide, involving input from 130 top health experts.
AHCRA - Community consultation and Engagement
This is a paper developed during the AHCRA two-day workshop in Adelaide on 16-17 November 2005. It looks at the need for dialogue with citizens and consumers about the future of the Australian health system.
AHCRA statement on Reducing Hospital Waiting Lists
On 28 July 2006, Kerren Clark on behalf of the AHCRA, delivered an Opening Statement to the ACT Public Accounts and Estimates Committee that outlined four key strategies for reducing hospital waiting lists.
AIHPS Consumer Engagement in Australian Health Policy
These six documents and reports produced by The Australian Institute of Health Policy Studies (AIHPS) for the project Consumer Engagement in Australian Health Policy: Investigating Current Approaches and Developing New Models for More Effective Consumer Participation
ANZCA International Medical Graduate Specialists Interview Panel
Position Description.
Aboriginal and Torres Strait Islander Hospital Accreditation Project Community Report
The Aboriginal and Torres Strait Islander Hospital Accreditation Project aims to obtain accurate data about the use of hospitals by Koori patients and to help develop more accessible and culturally appropriate hospital services. This report looks at the problems and successes of the project and makes suggestions for improvement.
Access to thousands of free articles is just a click away with My Account.
Accessible Events - A Guide for Organisers
This is a useful resource for anyone planning a consumer participation event. The guide was developed by Meeting Events Australia and the Human Rights and Equal Opportunity Commission. It discusses the legal responsibilities organisers have for making sure that their event is accessible for people with disabilities and gives practical suggestions on how to do this from start to finish.
Accredited Training in Health Consumer Leadership and Engagement
Course flyer February 2011
Twenty programs and projects to implement the healthy cities principles and community coalitions were reviewed. Most cases were able to implement successful programs through willingness to collaborate, emphasis on engaging diverse parts of the community, responsiveness to community needs and opportunities for resident input into decision making.
a list of acronyms form the health and government sector in Australia
Health Issues Centre supports the on-going development of 19 Victorian Community Advisory Committees (CACs) in Metropolitan and Regional Health Services. As part of this support, a number of learning and development sessions are held. Some of the findings of these sessions have been documented including this one on advocacy.
Advocacy in Action: a toolkit for Public Health Professionals
The toolkit is a practical resource that supports and encourages health professionals and interested organisations to engage in advocacy.
The Advocacy in Action toolkit:
Demystifies advocacy,
Includes examples and case studies demonstrating how advocacy strategies can be applied across different issues,
Offers tips to effectively work with the media, and
Provides practical tools to help you and your organisation advocate on your issue.
The second edition of the Advocacy in Action toolkit features more examples and case studies, a comprehensive guide to evaluation, and more tips on working with the media.
Advocacy, Leadership, Community Participation: A Training Program for Health Consumers and Carers
This is a useful clear set of practical workshops designed and tested by a broad range of community members. Produced by North Central Metro Primary Care Partnership, it aims at producing more effective participation in the health system. The program outlines workshop topics such as advocating for change, working in groups and finding funds. It includes tips for facilitators and information sheets on issues such as confidentiality and what to consider when deciding whether to join a committee.
The aim of this study was to develop and pilot test a brief survey for patients in Swiss hospitals. Evidence from the qualitative interviews indicates that safety remains an unsaid word between patients and their care providers.
This is an independent website publicising the aged care issues of older citizens. The site includes a large range of national and state-specific articles, statistics and checklists on topics such as quality of care and elder abuse. There is a discussion forum and viewers' stories can be published on the site.
Alfred Health CAC Selection Information
Alfred Health CAC Selection Information
The report documents the development of a 'staff-consumer collaboration in treatment' workbook which is designed for collaborative use by case-managers and consumers within individual treatment settings, and aims to assist consumers to participate more fully within their own treatments.
Alfred Psychiatry Consumer Participation: Book of Procedure
This report summarises the achievemenets of the Consumer and Provider Partnerships Project (CAPPs) and has been a consumer initiative developed by consumers who are current members of the Alfred Psychiatry Consumer Participation Program and who are currently accessing Alfred Psychiatry for their hown health needs. Resources coming out of the project include an Audit Tool which could be used by services other than Alfred Psychiatry. The Book of Procedures and Staff-Consumer Collaboration in Treatment
Alice Springs Hospital: Consumer Feedback Questionnaire and Guide for Interviewers
Consists of a Consumer Feedback Questionnaire and Guide for Interviewers for the Alice Springs Hospital. This is a companion document to the report 'Alice Springs Hospital: Implementing consumer feedback into a continuous quality improvement framework', also available from the this website.
Following a review of curent and past research, and individual and group discussions with Aboriginal consumers and health workers, several potential tools were identified, including development of a culturally appropriate questionnaire, face to face interviews, posters, pamphlets, training sessions and presentations, and creation of an Aboriginal consumer advisory group. The 'Alice Springs Hospital Consumer feedback questionnaire and Guide for Interviewers' is also available from the Publications section of this website.
This study evaluates how well three participatory techniques - a mail survey, focused conversations with existing community groups, and community dinners - meet three key community oriented criteria. These are: representative-ness, working toward identification of communitywide common good, and incorporation of values and beliefs into the discussion. The evaluation conducted in this study indicates that the techniques produce positive results for two of these criteria, but may not be representative of the communities as a whole.
An analysis of the contribution of health consumer representatives to medical decisions and outcomes
Produced by the Consumer Health Forum of Australia.
The evaluation reports significant impacts and achievements including that the strategy was consumer driven; represented a collaborative partnership between consumers and senior management and increased mutual respect; has been accepted as a component of staff selection; is a visible commitment to meaningful consumer participation and the evaluation has identified a range of learnings for consumers.
An evaluation of the National Resource Centre for Consumer Participation in Health
This report presents the findings and conclusions of the final impact evaluation of the National Resource Centre for Consumer Participation in Health (NRCCPH). It is the last stage of a three year evaluation by the Centre for Development and Innovation in Health (CDIH), La Trobe University. The primary purposes of this final impact evaluation were to assess the achievements of the Centre in terms of its goals and objectives; to evaluate the effectiveness and impact of the Centre in promoting awareness and utilisation of consumer participation strategies in health, and to make recommendations about the future development of the Centre.The evaluation methodology included document analysis of a range of reports, surveys of users and working group members of the Centre, key informant interviews and reflective discussions with staff.
